Arkansas City native Layne Moore, author of “The Scaries” novels, is seeking support in his quest to survive End Stage Renal Disease (ESRD).
“I found out last year my kidneys were failing,” he said.
“The dialysis treatments put me in a chair for 3 1/2 to four hours, three days per week. I’m not complaining … it maintains my life.”
Dialysis treatments flush waste, salt and extra water to prevent them from building up in the body, essentially doing the job of the kidneys.
“I want to do more than maintain,” Moore said. “I’m not ready to die.”
Moore’s discovery of his illness came as something of a shock — he found out he was sick during a routine checkup.
“Routine lab tests with my primary care doctor showed that my creatinine levels were high,” he said in an interview this week.
“I was referred to a nephrologist as Stage 4 and then it quickly progressed to Stage 5. There are five stages to this.”
Before going to the doctor, Moore had no idea that he was in a state of kidney failure.
“I noticed more fatigue, but I attributed that to having diabetes. Or just getting older,” he said.
How to help Moore
There are many ways individuals can help Moore, one of which is by contributing to or visiting a garage sale that is being held by a local church.
This garage sale will be from 8 a.m. to noon July 14 at First Baptist Church, located at 220 E. Central Ave.
Moore indicated he will be in attendance during the fundraiser.
“I’m asking you to love unconditionally, discover at your own pace and help me raise money to offset the terrifying expenses that lie ahead,” he said.
“The money you donate is sent directly to the church I attend in Lawrence (Lawrence 360 Church). They’ve been kind enough to act as treasurer. We’re donating any money not used to other families who are struggling with the same disease. That’s the unconditional love part.”
To contribute items to this fundraiser event, email Lisa McClure at email@example.com.
Living kidney donor
Another way people can help is by considering a donation of one of their own kidneys.
“I am actively seeking a living kidney donor for a transplant to be performed at the KU Medical Center in Kansas City,” Moore said.
Donors do not necessarily have to share the same blood type in order to be viable for a transplant.
“There are some misconceptions about kidney donation, in particular a living donation,” Moore said.
“A donation from a living kidney donor is more stable for the recipient. It tends to last longer (and) the outcomes are more successful.”
“They’ve also devised an ingenious way to help transplant more people by way of a transfer program. A donor can be matched to me if they aren’t compatible with someone else, and vice versa.”
Moore is working with a living donor coordinator at KU.
Individuals who would like to find out if they are a match can begin the process by calling Samantha at (913) 588-5049.
Be on guard for health
Because of the way Moore found out about his disease, he encourages others to keep track of health factors.
“Pay attention to high blood pressure. It is one of the contributing factors to future kidney disease,” he said.
“Combined with the diabetes, I think that’s probably the road I was headed on. Both conditions are so commonplace in our society to the point where I think we are seeing an increase in living kidney donation.”
Moore thinks there are many things that people don’t understand about donating organs.
“The common misconception is that you have to be dead to give a kidney. Not true,” he said. “I could receive a phone call saying that a deceased donor is available, and they match my body, (but) the outcomes for living donation are much better for the patient.”
Facts about live kidney donation
Among the facts about live kidney donation that can be found at the KU Medical Center website:
1. There is no cost to the donor. You are under NO financial obligation to pay for any medical expenses related to the transplant. This includes lab tests and scans prior to the transplant.
2. You have a live donor coordinator — your advocate — throughout the entire process to ensure your health is protected. You never will be put at risk in the event that potential future health issues are discovered.
3. You cannot be compensated for an organ donation.
4. When you make the call, you’ll be pre-screened to meet certain medical criteria. Your coordinator will make arrangements to see if your blood is a match. The process takes time. After you pass the initial screening, there will be several more tests to make sure you are healthy and safe.
5. Expect four to six weeks to recover after the surgery. This time is not compensated by insurance. Part of this fundraising campaign is to help you with financial needs during your recovery period while you’re away from work.
More information can be found at www.kansashealthsystem.com/transplant/kidney/living-donor.